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Lobbying Tracker

Who lobbies whom about what. Search Ireland's lobbying register to see who is influencing your TDs, ministers, and public officials — and on whose behalf.

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Lobbying Returns

2578

Registered Lobbyists

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Cystinosis Ireland Ltd

January–April

[Health] Rare Disease Taskforce met Minister Donnelly on 19th March regarding rare disease policy issues

Public Officials Lobbied

{'name': 'Stephen Donnelly', 'role': 'Minister (Department of Health)'}

Cystinosis Ireland Ltd

September–December

[Health] Submission to the National Screening Advisory Committee to include cystinosis in the national newborn blood spot screening programme (heel prick test).

Public Officials Lobbied

{'name': 'Stephen Donnelly', 'role': 'Minister (Department of Health)'}

Cystinosis Ireland Ltd

May–August

[Health] Requested a Dail question be raised on the status of the Human Tissue Bill

Public Officials Lobbied

{'name': 'Denis Naughten', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Cystinosis Ireland Ltd

January–April

[Health] Clarification asked by way of a parliamentary question on where the negotiations were between the HSE and Cheisi in relation to access to Procysbi in Ireland following the Health Technology Assessment report from the National Centre of Pharmacoeconomics

Public Officials Lobbied

{'name': 'Ruth Coppinger', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Cystinosis Ireland Ltd

May–August

[Health] Request to office of Richard Boyd Barrett to raise a PQ on the funding of novel therapies for medical conditions

Public Officials Lobbied

{'name': 'Richard Boyd Barrett', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Cystinosis Ireland Ltd

September–December

[Health] Briefing held in the AV Room of Leinster House for TDs and Seanators, hosted by Ruth Coppinger TD

Public Officials Lobbied

{'name': 'Email All Oireachtas Members', 'role': 'Email was sent to all Oireachtas members advising them of the session and encouraging them to attend.'} {'name': 'Event / Reception All Oireachtas Members', 'role': 'Ruth Coppinger TD hosted an information meeting in the AV room of Leinster House where a group of Rare Disease advocates discussed the needs of the rare disease community in Ireland.'} {'name': 'Ruth Coppinger', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Simon Harris', 'role': 'Minister (Department of Health)'}

Lobbying Tracker

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