Overwatch Report

Alpha One Foundation

January–April

[Health] Change to public policy related to the distribution of the COVID vaccine to high risk groups with an underyling health condition. In this case it was related to people diagnosed with Alpha-1 Antitrypsin Deficiency. This is a genetic condition which can affect the lungs and can cause COPD which creates a very high risk of severe illness requiring hospitalisation in the event of contracting COVID-19. Consultant for the condition would determine those patients requiring early vaccinati

Public Officials Lobbied

{'name': 'Stephen Donnelly', 'role': 'Minister (Department of Health)'}

Alpha One Foundation

September–December

[Health] Lobbied ministers to prioritize the booster vaccine for vulnerable groups specifically those with Alpha-1 Antitrypsin Deficiency, These patients suffer with sever COPD, Emphysema and other lung diseases which may make them particularly vulnerable to the effects of COVID 19

Public Officials Lobbied

{'name': 'Micheál Martin', 'role': 'Taoiseach (Dáil Éireann, the Oireachtas)'} {'name': 'Stephen Donnelly', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Alpha One Foundation

May–August

[Health] Contacted 2 politicians requesting help for ALpha-1 Patient regarding lung transplant list and request for assistance with relocation to new social houseing

Public Officials Lobbied

{'name': 'Mary Butler', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Anne Rabbitte', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Alpha One Foundation

January–April

[Health] Emails to Simon Harris requesting a meeting to discuss the funding of Respreeza for 19 Alpha One patients, and to get an update from him on thge outcome of a meeting between the HSE and CSL Behring the Pharmaceutical company who developed and supplied the therapy.

Public Officials Lobbied

{'name': 'Michael Martin (Former DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Alan Kelly (Currently employed as a DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'John Brassil (Currently employed as a DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Michael Collins (Currently employed as a DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Micheál Martin', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Simon Harris', 'role': 'Minister (Department of Health)'} + 5 more

Alpha One Foundation

May–August

[Health] Communication to political representatives related to the reimbursement of a Therapy for Alpha-1 patients

Public Officials Lobbied

{'name': 'John Brassil', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Alan Kelly', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Simon Harris', 'role': 'Minister (Department of Health)'} {'name': 'Micheál Martin', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Alpha One Foundation

September–December

[Health] Request support for HSE and Phama company supply and administration for Respreeza for 19 Alpha1 patients

Public Officials Lobbied

{'name': 'John Brassil (Former DPO)', 'role': 'Minister (Carlow County Council)'} {'name': 'Alan Kelly (Former DPO)', 'role': 'Minister (Dáil Éireann, the Oireachtas)'} {'name': 'Micheál Martin (Former DPO)', 'role': 'Minister (Dáil Éireann, the Oireachtas)'} {'name': 'John Brassil', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Alan Kelly', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Micheál Martin', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Alpha One Foundation

January–April

[Health] Reimbursement of Respreeza, a new therapy for Alpha-1 Antitrypsin Deficiency patients. This followed an NCPE assessment not to reimburse this therapy by the department of Health.

Public Officials Lobbied

{'name': 'Alan Kelly', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Simon Harris', 'role': 'Minister (Department of Health)'} {'name': 'Clare Daly', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Michael Harty', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': "Louise O'Reilly", 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'John Dolan', 'role': 'Senator (Seanad)'} + 28 more

Alpha One Foundation

May–August

[Health] Reimbursement of Respreeza, a new therapy for Alpha-1 Antitrypsin Deficiency patients. This followed an NCPE assessment not to reimburse this therapy by the department of Health.

Public Officials Lobbied

{'name': 'Email All TDs', 'role': "An invitation was emailed to Td's and Senators to a meeting in the AV room in relation to Alpha-1 an Respreeza in Leinster House on 12th April 2017"} {'name': 'Social Media All Oireachtas Members', 'role': "TD's tweeted to outline Alpha One Foundation's disappointment at the decision by the Minister of Health to decline funding of Respreeza despite the clear benefits of the drug. Minister for Health being urged to reconsider the decision"} {'name': 'Gerry Adams', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Seán Barrett', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Richard Boyd Barrett', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Tommy Broughan', 'role': 'TD (Dáil Éireann, the Oireachtas)'} + 108 more

Alpha One Foundation

September–December

[Health] Emails related to requests for the review and reversal of a decision by the NCPE and the HSE to reimburse an augmentation therapy called Respreeza for Alpha-1 Patients. This is a genetic disease and currently 19 patients were receiving the therapy on compassionate use grounds and the compassionate use programme had come to an end.

Public Officials Lobbied

{'name': 'Mr John Brassil (Currently employed as a DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Billy Kelleher (Currently employed as a DPO)', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'John Brassil', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Billy Kelleher', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'Simon Harris', 'role': 'Minister (Department of Health)'} {'name': "Louise O'Reilly", 'role': 'TD (Dáil Éireann, the Oireachtas)'} + 7 more

Lobbying Tracker

Most Lobbied TDs