Overwatch Report

Epilepsy Ireland

January–April

[Education and Training] Regarding Reasonable Accommodation (RACE) scheme in State Examinations

Public Officials Lobbied

{'name': 'Carol Nolan', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

January–April

[Education and Training] Reasonable Accommodations for state Examinations and the need for changes to system to better support students with epilepsy

Public Officials Lobbied

{'name': 'Thomas Byrne', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

January–April

[Education and Training] Reasonable Accommodations for students with Epilepsy sitting state examinations

Public Officials Lobbied

{'name': 'Joan Burton', 'role': 'Tánaiste and Minister (Department of Social Protection)'}

Epilepsy Ireland

January–April

[Health] Meeting with Minster Corcoran-Kennedy as part of the launch of the SENSE report on epilepsy specialist nurses, Feb 1st

Public Officials Lobbied

{'name': 'Marcella Corcoran Kennedy', 'role': 'Minister of State (Department of Health)'}

Epilepsy Ireland

January–April

[Health] Invited specific Oireachtas members to attend the launch of the SENSE study in Feb 2017

Public Officials Lobbied

{'name': 'Rónán Mullen', 'role': 'Senator (Seanad)'} {'name': 'Colm Burke', 'role': 'Senator (Seanad)'} {'name': 'Keith Swanick', 'role': 'Senator (Seanad)'} {'name': 'Michael Harty', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': 'John Dolan', 'role': 'Senator (Seanad)'} {'name': "Louise O'Reilly", 'role': 'TD (Dáil Éireann, the Oireachtas)'} + 5 more

Epilepsy Ireland

January–April

[Health] Senator Colm Burke attending the SENSE study launch February 2017

Public Officials Lobbied

{'name': 'Colm Burke', 'role': 'Senator (Seanad)'}

Epilepsy Ireland

January–April

[Health] Invitation to attend Epilepsy Ireland National Saddle Up Cycle for Epilepsy, Feb 2017

Public Officials Lobbied

{'name': 'Al McDonnell', 'role': 'Councillor (Mayo County Council)'}

Epilepsy Ireland

May–August

[Education and Training] To highlight education issues for students with epilepsy including impact of epilepsy on education, Special Needs Assistants and reasonable accommodation provisions.

Public Officials Lobbied

{'name': "Fiona O'Loughlin", 'role': 'Councillor (Kildare County Council)'}

Epilepsy Ireland

May–August

[Education and Training] To highlight issues for students with epilepsy sitting state exams and inadequacies of existing reasonable accommodation provisions.

Public Officials Lobbied

{'name': "Frank O'Rourke", 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

May–August

[Health] Meeting with Minister Finian McGrath to highlight some of Epilepsy Ireland’s key advocacy issues including free travel for people with epilepsy; reasonable accommodations for state exams; and funding for Section 39 organisations.

Public Officials Lobbied

{'name': 'Finian McGrath', 'role': 'Minister of State (Department of Health)'}

Epilepsy Ireland

September–December

[Health] Meeting with Senator David Norris regarding the medication sodium valproate, the need for increased risk reduction measures to prevent foetal valproate syndrome and the need to ensure that the needs of families affected by foetal valproate syndrome are met

Public Officials Lobbied

{'name': 'David Norris', 'role': 'Senator (Seanad)'}

Epilepsy Ireland

September–December

[Health] Contact with Gino Kenny TD concerning provisions of the Cannabis for Medicinal Use Bill and requested to meet Deputy Kenny to discuss Epilepsy Ireland's feedback on the Bill.

Public Officials Lobbied

{'name': 'Gino Kenny', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

September–December

[Transport] Follow up to Minister Finian McGrath on previous meeting about extending the free travel scheme to people with epilepsy who are ineligible to hold a driver's licence on account of their epilepsy.

Public Officials Lobbied

{'name': 'Finan McGrath', 'role': 'Minister of State (Department of Social Protection)'} {'name': 'Gerry Maguire', 'role': 'Special Adviser (Department of Health)'}

Epilepsy Ireland

September–December

[Health] Meeting with Louise O’Reilly TD regarding epilepsy medication sodium valproate and its use in women with epilepsy, including foetal valproate syndrome

Public Officials Lobbied

{'name': "Louise O'Reilly", 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

September–December

[Health] Meeting with Minister Finian McGrath regarding issues affecting people with epilepsy; including extending access to Free Travel scheme; RACE scheme for state exams; epilepsy specialist nurses and other issues including the work of Epilepsy Ireland and services provided

Public Officials Lobbied

{'name': 'Gerry Maguire', 'role': 'Special Adviser (Department of Health)'} {'name': 'Finian McGrath', 'role': 'Minister of State (Department of Health)'}

Epilepsy Ireland

January–April

[Health] Epilepsy Ireland & Headway invited Leo Varadkar Minister for Health to launch the joint #iseebeyond campaign, an awareness campaign to raise awareness of hidden disability

Public Officials Lobbied

{'name': 'Leo Varadkar', 'role': 'Minister (Department of Health)'}

Epilepsy Ireland

January–April

[Health] Discussed situation with Micheal Martin about Paediatric Epilepsy Nurses in Cork University Hospital not being replaced. One nurse retired last summer and the other has taken Maternity Leave, leaving the epilepsy service severely understaffed.

Public Officials Lobbied

{'name': 'Micheál Martin', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

May–August

[Education and Training] Reasonable Accommodations for State Examinations and the need to undertake an immediate review of same

Public Officials Lobbied

{'name': 'Richard Bruton', 'role': 'Minister (Department of Education and Skills)'}

Epilepsy Ireland

May–August

[Health] Cannabis for Medicinal Use Regulation Bill 2016

Public Officials Lobbied

{'name': 'Bríd Smith', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

May–August

[Health] Invited Minister of State for Health Promotion to officially open Epilepsy Ireland's new Midlands office

Public Officials Lobbied

{'name': 'Marcella Corcoran Kennedy', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

May–August

[Health] Responding to enquiry from Senator Ged Nash on potential for drop-in centre in Drogheda

Public Officials Lobbied

{'name': 'Ged Nash', 'role': 'Senator (Seanad)'}

Epilepsy Ireland

September–December

[Health] Extended an invitation to Minister Harris to officially launch the final report of the SENSE Study on Epilepsy Specialist Nursing

Public Officials Lobbied

{'name': 'Simon Harris', 'role': 'Minister (Department of Health)'}

Epilepsy Ireland

September–December

[Education and Training] Regarding the issue of Reasonable Accommodations for State Examinations, and the urgent need expressed by students with epilepsy and their families to fundamentally review the scheme.

Public Officials Lobbied

{'name': 'Carol Nolan', 'role': 'Councillor (Offaly County Council)'}

Epilepsy Ireland

September–December

[Health] Cannabis for Medicinal Use Regulation Bill

Public Officials Lobbied

{'name': 'Catherine Byrne', 'role': 'TD (Dáil Éireann, the Oireachtas)'}

Epilepsy Ireland

September–December

[Health] Cannabis for Medicinal Use Regulation Bill 2016

Public Officials Lobbied

{'name': 'Gino Kenny', 'role': 'Councillor (South Dublin County Council)'}

Epilepsy Ireland

September–December

[Education and Training] Regarding the issue of Reasonable Accommodations for State Examinations, and the urgent need expressed by students with epilepsy and their families to fundamentally review the scheme.

Public Officials Lobbied

{'name': 'Joan Burton', 'role': 'Tánaiste and Minister (Department of Social Protection)'}

Epilepsy Ireland

September–December

[Health] Requested meeting regarding the work of the FACS Forum, which is working on awareness/ advocacy issues around the use of the epilepsy drug sodium valproate and its effects in pregnancy.

Public Officials Lobbied

{'name': 'John Dolan', 'role': 'Senator (Seanad)'}

Epilepsy Ireland

September–December

[Health] Invited members of Oireachtas to launch of Epilepsy Ireland Strategic plan

Public Officials Lobbied

{'name': "Kate O'Connell", 'role': 'Councillor (Dublin City Council)'} {'name': 'Bernard Durkan', 'role': 'TD (Dáil Éireann, the Oireachtas)'} {'name': "Margaret Murphy O'Mahony", 'role': 'Councillor (Cork County Council)'} {'name': 'Colm Burke', 'role': 'Senator (Seanad)'} {'name': 'Rónán Mullen', 'role': 'Senator (Seanad)'} {'name': 'Keith Swanick', 'role': 'Senator (Seanad)'} + 5 more

Epilepsy Ireland

September–December

[Education and Training] Regarding the issue of Reasonable Accommodations for State Examinations, and the urgent need expressed by students with epilepsy and their families to fundamentally review the scheme.

Public Officials Lobbied

{'name': 'Thomas Byrne', 'role': 'Senator (Seanad)'}

Epilepsy Ireland

September–December

[Health] International Epilepsy Day (IED) will happen on the 08/02/2016 Small event planned in Tullamore on the date. Invited Sen John Whelan to launch event.

Public Officials Lobbied

{'name': 'John Whelan', 'role': 'Senator (Seanad)'}

Lobbying Tracker

Most Lobbied TDs