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Lobbying Tracker
Who lobbies whom about what. Search Ireland's lobbying register to see who is influencing your TDs, ministers, and public officials — and on whose behalf.
84838
Lobbying Returns
2578
Registered Lobbyists
Health Research Charities Ireland
[Health] Sharing recommendations on ways to improve the health research landscape in Ireland
Public Officials Lobbied
Health Research Charities Ireland
[Health] Programme for Government
Public Officials Lobbied
Health Research Charities Ireland
[Health] Letter sent by Rare Disease Taskforce in support of the ongoing review of the HSE Governance of the Drug Assessment and Reimbursement process.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Letter Re: Patient advocate appointments to the Health Service Executive board
Public Officials Lobbied
Health Research Charities Ireland
[Health] National Rare Disease Plan
Public Officials Lobbied
Health Research Charities Ireland
[Health] Position Paper
Public Officials Lobbied
Health Research Charities Ireland
[Health] Call for 1. A new National Strategy to promote access to new & innovative drug therapies 2. Immediate direct engagement between the Dept of Health & relevant stakeholders, including patient organisations & industry, to seek consensus on drug access 3.Faster operationalisation of the Rare Diseases/Medicinal Products Technology Review Committee to consider orphan drug therapy submissions. 4.Resources for the NCPE to develop appropriate clinician & patient involvement in reimbursement/acce
Public Officials Lobbied
Health Research Charities Ireland
[Health] Briefing Deputy O'Reilly on the work of the MRCG and IPPOSI with regard to access to medicines, and in particular the difficulties associated with patients access to orphan drugs. Presented Deputy O'Reilly with copies of the Drug Iceberg Report V.1 and V.2.
Public Officials Lobbied
Health Research Charities Ireland
[Health] •A commitment to increased investment for medical research. •Appointment of a Director of Research in the HSE •Development and maintenance of patient registries. •Passing of the Human Tissue Bill and the Health Information & Patient Safety Bill. •Implementation and resourcing of the National Rare Disease Plan. •Publication of National Genetics and Genomics Plan
Public Officials Lobbied
Health Research Charities Ireland
[Health] •A commitment to increased investment for medical research. •Appointment of a Director of Research in the HSE •Development and maintenance of patient registries. •Passing of the Human Tissue Bill and the Health Information & Patient Safety Bill. •Implementation and resourcing of the National Rare Disease Plan. •Publication of National Genetics and Genomics Plan
Public Officials Lobbied
Health Research Charities Ireland
[Health] •Appointment of a Director of Research in the HSE • Passing of the Human Tissue Bill and the Health Information & Patient Safety Bill. •Reinstatement of full funding for MRCG/HRB Joint Funding Scheme ;Funding for the MRCG; The 2017 Work Programme for the Innovation 2020 Implementation Group/researcher careers
Public Officials Lobbied
Health Research Charities Ireland
[Health] A commitment to increased investment for medical research. o The appointment of a Director of Research in the HSE o The development and maintenance of patient registries. o The passing of the Human Tissue Bill and the Health Information & Patient Safety Bill. o The implementation and resourcing of the National Rare Disease Plan. o The publication of National Genetics and Genomics Plan
Public Officials Lobbied
Health Research Charities Ireland
[Health] Call for the introduction of the Health Information & Patient Safety Bill and the Human Tissue Bill,the Depart of Health/ HRB to reinstate the full €1 million allocation to the HRB/MRCG Joint Funding Scheme, increased investment in research funding/increase in funding for work of MRCG, call for a dedicated Minister for Science and Research, MRCG wish to nominate candidates to join the Innovation 2020 Implementation working group, with particular regard to researcher careers.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Call for the introduction of the Health Information & Patient Safety Bill and the Human Tissue Bill,the Depart of Health/ HRB to reinstate the full €1 million allocation to the HRB/MRCG Joint Funding Scheme, increased investment in research funding/increase in funding for work of MRCG, call for a dedicated Minister for Science and Research, MRCG wish to nominate candidates to join the Innovation 2020 Implementation working group, with particular regard to researcher careers.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Call for the introduction of the Health Information & Patient Safety Bill and the Human Tissue Bill,the Depart of Health/ HRB to reinstate the full €1 million allocation to the HRB/MRCG Joint Funding Scheme, increased investment in research funding/increase in funding for work of MRCG, call for a dedicated Minister for Science and Research, MRCG wish to nominate candidates to join the Innovation 2020 Implementation working group, with particular regard to researcher careers.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Call for a New National Strategy on access to new and innovative drug therapies
Public Officials Lobbied
Health Research Charities Ireland
[Health] Funding proposal for The MRCG
Public Officials Lobbied
Health Research Charities Ireland
[Health] Invite representation from the Department of Health in the May Irish Health Research Forum. The theme of this Forum is 'How can legislation facilitate health research'.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Attendance of Mr Muiris O'Connor at the Irish Health Research Forum to present on health legislation
Public Officials Lobbied
Health Research Charities Ireland
[Health] Request for meeting with Mr Muiris O'Connor to discuss the Irish Health Research Forum
Public Officials Lobbied
Health Research Charities Ireland
[Health] Emails to Muiris O'Connor, Assistant Secretary, Department of Health, to set up meeting to discuss a review of progress of the Irish Health Research Forum (IHRF).
Public Officials Lobbied
Health Research Charities Ireland
[Health] Seeking meeting with Muiris O'Connor regarding Irish Health Research Forum (IHRF)
Public Officials Lobbied
Health Research Charities Ireland
[Health] Attendance of Muiris O'Connor, Assistant Secretary, Department of Health, at Medical Research Charities Group Conference on Public and Patient Participation in Research.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Seeking meeting with Mary Mitchell O'Connor regarding the Medical Research Charities Group (MRCG) and Irish Health Research Forum (IHRF)
Public Officials Lobbied
Health Research Charities Ireland
[Health] Meeting with Muiris O'Connor to discuss the work of the Irish Health Research Forum
Public Officials Lobbied
Health Research Charities Ireland
[Health] Distribution of our Manifesto for Medical Research which highlighted the key priority areas, relating to medical research, of our 35 members to be included in party election manifestos and any subsequent Programmes for Government.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Attendance at the launch of our Manifesto for Medical Research. The manifesto covers 5 key priority areas of our member on areas of medical research, patient registries, legislation and the Rare Disease Plan.
Public Officials Lobbied
Health Research Charities Ireland
[Health] Participation of the Head of R&D and Health Analytics from the Department of Health in a panel discussion at the November Irish Health Research Forum. The topic of the panel discussion was 'How do we make a career in research more attractive to our best and brightest?'
Public Officials Lobbied
Health Research Charities Ireland
[Health] Meeting with Muiris O'Connor to discuss the role of The MRCG
Public Officials Lobbied
Health Research Charities Ireland
[Health] Meeting with Minister for Science, Technology and Innovation, Damien English T.D.
Public Officials Lobbied